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By the time he was three, Walker's parents were concerned enough about his delayed development to consult a paediatric neurologist. Doctors diagnosed autism and issued a grim prognosis: 'I hold out no hope for this child'. But they hadn't accounted for Walker's intelligence, affection, and sense of humour – or for the remarkable bonds that grew within his family. Walker's father, Robert Hughes, tells a touching and inspiring story of discovering that their 'perfect little boy had a problem'. With disarming honesty and humour, the book tells how a family copes and keeps hope alive despite the staggering difficulties autism presents.
Trauma, the Body and Transformation
Trauma suffered during childhood can affect not only a person's emotional and mental health, but also their physical health, even into adulthood. This unique book fills a gap in research in this area, providing personal and theoretical perspectives on trauma and recovery. The contributors tell powerful stories of traumatic childhood events, including bereavement, abuse and evacuation and separation from parents. They document their reactions to trauma whether through illness, disability, addiction, psychosomatic disorders, self-harming behaviours or dissociation. Each author also shows the pathway they have taken towards transforming their bodies to well-being. This will be a valuable resource for those who are dealing with the impact of childhood trauma in their own lives; their families and friends whose lives are also touched; workers in the field of trauma, especially medical practitioners who can sometimes feel helpless when faced with patients whose symptoms they cannot understand or heal; and counsellors, psychotherapists and psychologists. This book will also be of value to researchers interested in narrative research methods.
Groups in Music
Music in Groups happens all the time: in the street, the classroom, in music colleges, community centres, hospitals, prisons, churches and concert halls; at raves, weddings, music festivals, public ceremonies, music therapy sessions, group music lessons, concerts and rehearsals. Some group musicking seems to 'work' (and play) better than others; some sessions feel exhausting even if things are going well; and at other times, we can't begin to explain the complex musical and relational textures of group music work to funders, employers, friends, colleagues, or line managers. In this book, music therapist Mercédès Pavlicevic develops a broad-based discourse to describe, analyse and guide the practice of group musicking, drawing on her own extensive experience. The text is illustrated with vignettes drawn from a range of formal and informal settings that include spontaneous public occasions, collective rituals, special and mainstream education, music therapy, the concert hall, the music appreciation group and community work. This book makes you think about balancing individual and group needs, the development of group time, dealing with over-enthusiastic performers who 'hog' the group sound, undercurrents in music groups, the complications of dealing with institutions, preparing music listening programmes and buying instruments for group work – if you're involved in any kind of group musicking, this book is for you.
Inclusive Research with People with Learning Disabilities
In this thought-provoking book, Jan Walmsley and Kelley Johnson discuss participative approaches to research and provide an up-to-date account of inclusive practice with individuals with learning disabilities. Drawing on evidence from two major studies, they explain how lessons learnt from inclusive research in the learning disability field are applicable to others working with marginalized groups. The authors examine the origins and the process of inclusive research, describing: * how and why it takes place * who carries it out * who funds it * how it is designed * how it relates to policy and practice. They look at the challenges inherent in this work, such as balancing the voice of the researcher with that of disabled participants and clarifying roles within research projects, and explore how it can become more inclusive and empowering. Providing valuable information and advice to researchers, policy makers and students as well as other health and social care professionals, this book presents a comprehensive examination of participative research in social care.
In Living Color
The meaning of pastoral care in modern multicultural societies is challenged and reexamined from a pluralistic, global perspective in this book. Emmanuel Lartey stresses the importance of recognizing different cultural influences on individuals in order to effectively counsel, guide and empower them. He provides a clear and concise history of pastoral care and considers its relationship to different models of counseling and spirituality. This new edition has been updated to reflect postmodern and postcolonial studies and provides illustrations of how an intercultural approach can work in practice. Theological teachers and students will welcome its return as an indispensable introduction to the field of pastoral care. In Living Color is an essential source of inspiration to leaders from any religious stream who wish to provide pastoral care in a way that reflects their community's cultural diversity. This book is also a useful resource for practitioners in a wider range of caring contexts who work in multicultural environments.
Working with People with Learning Disabilities
A comprehensive introduction to working with people with learning disabilities, this guide provides the theoretical understanding needed to inform good practice and to help improve the quality of life of people within this group. Using accessible language and case examples, the authors discuss both psychological and practical theories, including: * person-centred and behavioural approaches * anti-discriminatory and anti-oppressive approaches * systems theory * task centred approach * role theory. Emphasising empowerment and inclusion of those with learning disabilities, they relate theory to issues such as loss and bereavement, sexuality and social stigma. They also provide guidance for practitioners on social policy and legislation and explore crisis intervention, values and ethics, advocacy and joint agency work, making this an extremely useful resource for social workers, nurses, teachers care workers and others working with people with learning disabilities.
Asperger Syndrome in Adolescence
Childhood and adult experiences of individuals with Asperger Syndrome (AS) are becoming increasingly well documented, yet the crucial formative teenage years have, so far, been neglected. Adolescence is a difficult time for any teenager, but when you have Asperger Syndrome this already emotionally complex time of life becomes all the more challenging. Reflecting the views of parents, professionals and those with AS themselves, this book tackles issues that are pertinent to all teenagers, such as sexuality, depression and friendship, as well as discussing topics like disclosure and therapeutic alternatives that are more specific to those with AS. This book aims to make the transition from child to adult as smooth as possible, and is an essential survival guide to adolescence.
Build Your Own Life
As someone with Asperger Syndrome, Wendy Lawson knows all about the social difficulties that accompany the condition. In this book, she guides others on the autism spectrum through the confusing map of life, tackling the building bricks of social existence one by one with humour, insight and practical suggestions. Exploring what it is like to be an adult in an alien world, she looks at the concepts of 'self' and 'other' and talks about the people in our lives – how to relate to them, how we can use their support and how we can protect ourselves in the process. Using poetry and illustrations, she goes on to explain the difficult notion of `putting on a face', looks at how to assess personal skills in order to develop them into a suitable career and how to deal with unwelcome changes in life. This book is essential reading for all those on the higher-functioning end of the autism spectrum, helping them to get the best out of a world that is often confusing and aiding those close to them to understand their perspective.
A Guide to the Spiritual Dimension of Care for People with Alzheimer's Disease and Related Dementia
This is a book for those actively engaged in or interested in spiritual ministry to persons with dementia. Shamy draws heavily upon her experience, making this book very personal in its approach. I appreciated this style, feeling that the anecdotes anchor the book in the realm of what can be done rather than the theoretical world of the «maybes». The main concepts of the book, those of spirituality, retained through dementia, and personal worth should be acceptable to people of most world faiths.' – Leveson Newsletter 'This is an important book that has much to offer at a variety of different levels. It ranges from deep philosophical thinking to practical recommendations… a book that should be bought, digested and used frequently.' – Christian Council on Ageing 'Contains valuable material. The passages that attempt a definition of spirituality, and the stories about persons with dementia and how they have been helped to greater well-being, are relevant and excellently done. The spirit of Eileen Shamy shines out from these pages and carries its own message of passionate concern. One of the book's greatest strengths is its stories, which are unfailingly well-told and apposite.' – Ageing and Society Drawing on her years of experience as a clergywoman working with older people in care settings, Eileen Shamy discusses how pastoral work can help to develop holistic care for those suffering from dementia and related conditions – care which involves understanding of their spiritual as well as physical needs. This sensitive and informative book provides guidelines for pastoral visits to people with dementia, showing how to empathise with, understand and support individuals during a visit. Emphasising the importance of retaining dignity and freedom of choice for people with dementia, it also presents practical advice about memory cueing and provides frameworks for leading worship for those with dementia. A useful resource for a variety of people involved in pastoral care with older people, whether professionals or volunteers, this book provides inspiration from a respected author in the field of psychogeriatric care.
Demystifying the Autistic Experience
Parents, caregivers and educators are often at a loss about how best to support an individual with autism because they are overwhelmed by 'behaviours', inundated with prognoses and clinical jargon, or confused by technical information. This book introduces autism from a non-clinical, humanist perspective, emphasizing that we are all more alike than different. The author deconstructs the fundamental concepts of the autistic experience using language, examples and anecdotes that are concrete and understandable for all. Reinforced for the reader is the importance of listening carefully to what people are telling us about valuing differences, personal passions, communication, and holistic wellness.